Life Worth Living
Progressive Muscle Atrophy is what they say I have, a variant of ALS with a less predictable course, and what I feel is that it takes huge effort to breathe and cope with the pull of gravity. My spine wants to collapse, curve, curl up and rest. And yet I notice that when I activate my muscles gently, with full attention and entire ease, they respond a little. They do hear me.
It's such hard work. So I ask myself, why do it? What makes this particular life worth living? I am not particularly struggling with the popular question of what good am I. It's true that I don't seem to be of much use. This week I finally told all my clients/patients that I won't be back to work, and that hurt.